Tuesday, February 27, 2007

February 27, 2007 Fun together.


The Kyne family finally went on a vacation. . .The WHOLE family, Daddy included!!! We went to the Oregon coast and stayed with my parents. I cannot put into words what a pleasure it was to get away and be just a family without a care in the world. That is, aside from the phone call from our wonderful substitute caregiver saying, “The power is out on the fish tank and the living room carpet around it is soaked. What should I do?” This was my Mom’s 130 gallon fish tank with foot and a half long fish that we are babysitting for her so it was a very valid question. Following about thirty minutes of intense call/call back/call again scenarios, scrambling to get heaters setup and such, we got the situation resolved. Then on Monday, just as we were about to leave the coast for home, our caregiver called again to let us know she was sick with the flu. Again we scrambled the phone calls and were graciously bailed out by a friend who had worked with us in the past. So once again, we were a family without a care in the world. ;)

In all seriousness, it was a wonderful, relaxing, rejuvenating time. The kids built a sandcastle with Papa and the pictures didn't turn out (RRRRRRR!) except this one.






Jerusha Jean







Savannah Jourdan




Micah Samuel (The Engineer figuring out how to dam up the water)









Silas Charles and Daddy (Albert)









Even Mommy (Tanaya) got in a picture.

This looks like so much fun! I can't wait until Dad and Mom get their horses over to the coast so that we can ride on the beach.

Our renovations are coming along slowly but surely. We should be able to take a bath in our new spa tub in the next couple of days, but until then Silas still bathes in the kitchen sink. His hair is something to be reckoned with. Look how long it is!!! It looks like he stuck a finger in a socket.
My Little Bear looks soooo Italian in this one with all the curls. This is what the little guys from "The Grinch" looked like when they got their baths.

~ Silas just LOVES the water, can you tell?


Sunday, February 04, 2007

February 4, 2007 A Picture says a thousand words.

I just wanted to post a few pictures of the goings on the last couple months. This is the picture on Joshua's memorial card.And this is inside it:It says: Words From an Angel

I have not turned my back on you,

So there is no need to cry.

I’m watching you from Heaven,

Just beyond the morning sky.

I’ve seen you almost fall apart,

When you could barely stand.

I asked the Lord to comfort you,

And watched Him take your hand.

He told me you are in more pain,

Than I could ever be.

He wiped His eyes and swallowed hard,

Then gave your hand to me.

Although you may not feel my touch

Or see me by your side,

I’ve whispered that I love you,

While I wiped each tear you cried.

So please try not to ache for me,

We’ll meet again one day.

Beyond the dark and stormy sky,

A rainbow lights our way.

In Loving Memory

Joshua Francois Foubert

January 28, 2006 – December 8, 2006

This is a picture of him soon after birth.This is when he was around 4 months old.This was taken when he was about 6 months old.This was a picture I took at Joshua's memorial of a beautiful poem. I thought it was particularly fitting for this boy.


It says: I am Free

Don’t grieve for me, for now I’m free.

I’m following the path God laid for me.

I took his hand when I heard Him Call,

I turned to Him and left it all.

I could not stay another day

To laugh, to love, to work or play.

Tasks left undone must stay that way,

I found that peace at close of day.

If my parting has left a void,

Then fill it with remembered joy.

A friendship shared, a laugh, a kiss

Ah yes, these things I too will miss.

Be not burdened with times of sorrow

I wish you the sunshine of tomorrow.

My life’s been full, I’ve savored much;

Good friends, good times, a loved one’s touch.

Perhaps my time seemed all too brief –

Don’t lengthen it now with undue grief.

Lift up your hearts and share with me

God wanted me now – He set me free.


This is that tiny, tiny Aunna (who now weighs more than Silas!) and her proud parents, Dustin and Amanda.







Trina and DJ with his oh-so -cute hat.















Silas at Cristmas. I do believe he enjoyed it.








Micah and Silas having a jolly old time at Christmas.





















Our brand new, four month old, great dane puppy when we brought her home at the beginning of Nov. Pay particular attention to her mouth.











And one month later with Jerusha. . .








And shown here at 5 1/2 months with Silas. She still has plenty to grow! : )












She and Silas are great friends. They lounge around and share slobbery kisses (something we try to discourage!)


Just a few snapshots of life. . .The hard parts and the fun parts.

Love to all.

Saturday, February 03, 2007

February 3, 2007 The present and the past.

As a paranoid mother of a NICU survivor, I took Silas to the Pediatrician yesterday. Since this is our first big respiratory "thing" and he seemed to be gurgling in his chest, I didn't want to take any chances. It was so strange to see him sick, coughing, struggling to breathe and yet have his oxygen sats at 96% and to be told that his lungs sound clear; it is all in his head. It felt surreal. I can scarcely believe that he is just a normal little boy, no different than any of my other children. Thank-you, Lord, for your grace in our lives. And thank-you for bringing us through the most difficult time of our lives. And thank-you that 2006 is OVER! I don't think I can handle any more sadness or fear for awhile. Thank-you for knowing more than I and accomplishing Your will in my life no matter how I feel.

Back to Silas: his weight has dropped a bit since this sickness. He is down to 16lbs 11os. I'm not sure what this will mean in the grand scheme of things, but it greatly concerns my mom to hear of it. She always says, "He's so tiny," whenever she holds him.

He also has a hard time sleeping and nursing due to the head cold, so night times have been yet another adventure. You'd be surprised how well I can function on a couple hours sleep per night. I go about my daily chores with a smile on my face and asking, "What may I do for you now, my child?"------*N*OT*!* In fact, last night at 1:30am, I went back to our bedroom and in tears started listing all things that were overwhelming me to my bleary-eyed husband. He took the next shift and after 30 more minutes of fits, Silas finally fell asleep, exhausted. After my little outburst, I fell asleep on a chair in the living room and now my back aches something awful. All in all, our little bear is aptly named. . .He is the son of a mommy bear!

It seems petty to complain about these things after what we've been through and after reading about all the things other NICU families are still going through or [shudder] the alternative which other families have had to face. I swing from self-pity to guilt and back again. Maybe when I get a little more sleep I'll be able to think it through clearly, but right now I just feel awful no matter how I look at things.

I never did write about our trip to Portland for Silas' surgery. Every time I sat to write, I'd end up losing what I'd written or I was interrupted, and then I got the call from Becky about Joshua passing and I was too overcome with grief. Since I am back to writing again, I'll add some of what I was in the process of writing back then about our trip. I am doing this more for posterity and so that I can keep everything journaled for Silas when he is older more than anything else.

November 27, 2006:

The trip to Portland was long and tedious. Normally it should take five to five and a half hours to get from our house to Portland, but it took Silas and me eleven and a half hours. The rain was so intense that at one point, vehicle's on the freeway were at a stand still as traffic tried to maneuver through water which covered the tires on my van. However, Silas' surgery went well. Dr. Lashley said that it was a less complicated surgery than he had expected and it was completed without a hitch. Unfortunately, after the anesthesia wore off, Silas was pretty miserable for quite awhile. The doctor had anticipated a fairly quick recovery (one to two days), but Silas was on pain meds for about two weeks, the poor little guy. At any rate, he is doing well now and none the worse for the wear.

We were absolutely thrilled to get to visit with a bunch of our old NICU friends as well as some of the nurses and staff at Legacy Emanuel. It was a truly bizarre feeling to not know any patient in the NICU. It felt like I was forgetting someone, like I was missing a family member. I was grateful to learn that a little preemie girl from the NICU was finally discharged home early to her proud parents and six older brothers after a ten week stay. I teared up when I learned that another NICU babe, a preemie twin who has celebrated his first birthday, was readmitted upstairs to the pediatric intensive care unit for yet another surgery. He had celebrated his six month birthday in the NICU while we were there.

So many stories. So much pain. So much hope. So much sadness. So much love. It is a horrible, wonderful, terrifying place. A place where new little people are given a chance to say hello to their families and live their lives while others say farewell to those who love them most. The epitome of contradictions existing in a vortex unknown and unfelt by most who do something as natural as giving birth. And yet it has existed for longer than I've been alive. It is amazing to me that before I took my first breath as a babe, people have been in training to save the lives of infants. Meanwhile, families have throughout time faced the unimaginable horror of their new baby's possible death. I feel so naive. And yet I also feel so grateful to have had the privilege to get to know a handful of these wonderful families and their precious children.

Some families who've lost their children have expressed fear and anger that their children are being forgotten when others stop mentioning their child's name and try avoiding the subject. I must confess that I too am at a loss as to how to offer condolences and comfort without ripping open the wounds. It is difficult . . . No, it is impossible, I think, to do or say "the right thing". How do you tell someone that their loss still affects you when the anguish they themselves suffer cannot be comprehended? How do you tell a stranger or even a dear friend, that you remember their child often when their remembrance never ceases? How do you express your sorrow and regret at what could have been when their sorrow is so deep it penetrates every aspect of their lives? To offer my empathy seems to mock their pain. To say nothing seems to trivialize it. I guess all I can say is that I remember and will *always* remember the precious little ones who've touched my life and changed me in ways I still don't comprehend. Their lives mattered. They were and *ARE* important. And they have made ripples in life that, by the grace of God, will become waves of change that only time will reveal.

One child who still defis all the odds and faces the hardships of his life with a smile and good cheer, is Joshua. Never have I met a more laid back, happy baby as this little man. Between ER visits, hospital stays, and the daily ritual of painful vomiting every fifteen minutes or so from his severe acid reflux, I think I'd be ready to throw a temper tantrum or two! But this little trooper just smiles when its over as though to say, "Yeah, but I'm alive and my mommy loves me." Becky (mommy) is so exhausted. She is the sole care giver for Joshua. There is no one near who can (and is trained) to help with Joshua's care. All the agencies that help have said, "He isn't sick enough to warrant a nurse caring for him for a couple hours a week." One woman at an agency had the nerve to write a letter informing Becky that maybe she'd win the lottery and then she could afford to hire someone to provide care. The descriptive adjectives that come to my mind for that woman. . . ! In the meantime, Joshua is not taking any more pre-digested formula than when he left the NICU. His liver and spleen are so enlarged from the TPN (liquid nutrients given intravenously through his central line) that they bulge out from under his rib cage and, in all likelihood, he will need a liver transplant in the not too distant future. Joshua has not reached his $2,000,000.00 lifetime benefits yet (and yes we are all surprised!) but the co-pays for his innumerable doctor visits, ER visits and medications are so far beyond what anyone could afford that Becky has gotten on the Oregon Health Plan and they are covering some of the difference. Please keep this family in your prayers as they continue to struggle financially, physically and emotionally every day. They are both so precious to me and it rips my heart out that I am not able to be there to help them.I took Nanette (and her mom, JoAnn) with me to visit Becky and Joshua. It was amazing to see all three miracle babies sitting together on a couch in a living room. It truly felt like hallowed ground. The kids seemed to know that they shared a bond and we moms couldn't tear our eyes off of them. I just marveled that all three were sitting there together on the couch.DJ, a preemie born a little over a week before Silas weighing 3lbs 11oz (I think that's right Trina?!) came to visit us at the Ronald McDonald house as well. As you can see, He is no longer tiny. The boys had a fun time saying hello while Trina and I chatted.I was sad that we didn't get to see Aunna and her parents, Dustin and Amanda, but Trina says they are doing well.

*End of November 27, 2006 post*

Thanks to everyone who continues to pray for our little/big family. It is very much apreciated.

Love,
~Tanaya~